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1. Overview of this form.

This form is specifically designed for HTAs of pharmaceutical health interventions. The form includes prompts or suggestions to draw out the unique knowledge and perspectives of patients that are most likely to inform HTA. This will help in the assessment of the value of a health technology. This form is intended to help patient groups present the range of experiences and views of patients with the disease/condition for which the health intervention is being assessed. For COVID-19 assessments we do open up this form as well for individual patients who have experienced a past or current COVID-19 episode and caregivers/carers.

The first two pages of this survey contain text that includes background information necessary to understand the purpose of this form and the type of information that is most helpful to us.

Please note that the original document “Patient Group Submission Template for HTA of Health Interventions” was developed by HTAi, and has been further modified and adapted to the needs of EUnetHTA WP4 patient organisations’ input specifically related to this EUnetHTA JA3 Rapid Reviews Project ID: PTRCR19 and PTRCR20.

What do we mean by ''patient" and ''carer/care-giver''?

In all parts of this form the term “patient” refers to anyone living with, or who has lived with, or who has a high risk of the condition for which the health intervention is indicated. “Carer/care-giver” refers to anyone who assists a patient in an informal or unpaid capacity such as a family member or friend. It does not include those paid to give care such as doctors or nurses.

What information do we value from patient groups and individual patients or carers?

We recognise that patients and those who support them have unique knowledge about what it is like to live with a specific disease or medical condition. We believe patient groups can help us understand patients’ unique perspectives by collecting and presenting patients’ and carers/care-givers’ views and experiences by engaging with a wide range of patients. They can describe advantages and disadvantages of health interventions based on patients’ experiences and what patients value from a new intervention. For COVID-19, we have opened up this questionnaire also for individual patients and carers, so that we can gather as much information as possible.

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